Alan Finglas

Multiple Sulfatase Deficiency Action Foundation
Alan Finglas
Founder / Research Manager

Name and Surname: Alan Finglas

Country: Ireland

Contact detail: alanfinglas @gmail .com

Association Name: MSD Action Foundation / SavingDylan.com

Disease-related field: Multiple Sulfatase Deficiency – A Lysosomal Storage Disorder

Role within the association: Founder / Research Manager

Short bio: Alan is the father of a child affected by Multiple Sulfatase Deficiency. He has a keen interest in lysosomal storage disorders, translational research and rare disease advocacy. He is passionate about research and science that can lead to positive clinical outcomes for patients and their families.

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