Founder / Research Manager

Alan Finglas

Multiple Sulfatase Deficiency Action Foundation

Name and Surname:	Alan Finglas
Country:	Ireland
Contact detail:	alanfinglas @gmail .com
Association Name:	MSD Action Foundation / SavingDylan.com
Disease-related field:	Multiple Sulfatase Deficiency – A Lysosomal Storage Disorder
Role within the association:	Founder / Research Manager
Short bio:	Alan is the father of a child affected by Multiple Sulfatase Deficiency. He has a keen interest in lysosomal storage disorders, translational research and rare disease advocacy. He is passionate about research and science that can lead to positive clinical outcomes for patients and their families.