Lysosomal storage disorders (LSD)

Associazione Italiana Niemann Pick e Malattie Affini Vice-president: Andrea Paoli Visit the Associazione Italiana Niemann Pick e Malattie Affini website

International MPS Network (IMPSN) Executive Director: Kim Angel Visit the IMPSN website

Associazione Italiana Mucopolisaccaridosi e Malattie Affini President: Flavio Bertoglio Visit the AIMPS ETS website.

Asociația Gaucher România Patient Representative

Patient Representative

Cure and Action for Tay-Sachs Patient Representative

Fundacja Bohatera Borysa Patient Representative

LAL-D Patient Organization (LAL-D PO) Patient Representative

Patient representative:

Finnish Fabry Association Patient Representative

Patient representative: Antonina Waszczuk

Multiple Sulfatase Deficiency Action Foundation Patient Representative