Carbohydrate, fatty acid oxidation and ketone bodies disorders (C-FAO)

Asociacion Española de Enfermos de Glucogenosis Patient Representative: Enrique Landelino Contreras Pulido Vision of the Organisation: Promote a better knowledge of GSD and the medical and social needs of its patients, serving as a meeting point for all parties implied (patients, families, researchers, doctors, nurses…etc) and treating all aspects related to the best possible care

Ketotic Hypoglycemia International Patient Representative

Selbsthilfegruppe für angeborene Fettsäurenoxidationsstörungen Patient Representative

The International Advocate for Glycoprotein Storage Diseases Patient Representative

Association Francophone des Glycogènoses Patient Representative