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Carbohydrate, fatty acid oxidation and ketone bodies disorders (C-FAO)

Asociacion Española de Enfermos de Glucogenosis

Patient Representative: Enrique Landelino Contreras Pulido

Vision of the Organisation: Promote a better knowledge of GSD and the medical and social needs of its patients, serving as a meeting point for all parties implied (patients, families, researchers, doctors, nurses…etc) and treating all aspects related to the best possible care and the latest therapies, acting as an interlocutor with the different authorities within the administration and with other associations with similar goals. All activities are non-for-profit.

Spanish Association of GSD patients

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