Patient Centred Research Tool
Patient centred research, MetabERN is proud to announce that the international congenital disorders of glycosylation (CDG) Research network (CDG & Allies- PPAIN), in collaboration with the Portuguese Association for CDG (APCDG),NOVAUniversity of Lisbon and UZ Leuven have developed a patient-centered research tool to increase knowledge on immune system (dys)function among CDG children and adults – The Immunology and CDG Questionnaire (ImmunoCDGQ) for Patients & Caregivers.
The project was internationally launched on October 1st.
