Partner Organisations

MetabERN takes great pride in its collaboration with a diverse array of partner organisations dedicated to the advancement of research, support, and awareness in the rare diseases field. These partnerships form the foundation of our mission to effect positive change in the lives of individuals impacted by rare diseases, fostering collaborative knowledge sharing and providing access to valuable resources and innovative research opportunities.

We invite you to explore the profiles of our valued partner organisations to gain insights into the remarkable work we are collectively undertaking.

SSIEM

Logo SSIEM

Established in 1963, SSIEM aims to facilitate the exchange of ideas among professionals from various disciplines who share an interest in inherited metabolic diseases.

EPNS

Logo epns

EPNS is a non-profit independent Society for physicians, trainees/residents, PhD students, health professionals, scientists and students with a research or clinical interest in Child Neurology.

ISNS

Logo ISNS

ISNS is aiming to advance screening for neonatal and infant sicknesses and disorders, worldwide.

CASA DOS RAROS

logo casa dos raros e1725977732597

CASA DOS RAROS established in Porto Alegre, Brazil, is a non-profit non-governmental institution fully dedicated to diagnosis, care, research and education in rare diseases.

BRAINS FOR BRAIN

logo B4B

B4B aims to develop new and innovative therapeutic strategies to cross the Blood-Brain Barrier by uniting health professionals globally.

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