NCL Research Award 2019
The NCL Foundation offers €50,000 for research on CLN3 disease. Junior scientists and clinicians can apply by 30 Nov 2019.
NCL Research Award 2019 Read More »
News
Three Key Documents: Call for membership to existing ERNs
The call for new ERN members is open until 3 Dec 2019. Key documents for the application process are now available.
Three Key Documents: Call for membership to existing ERNs Read More »
MetabERN Affiliated Partners (AP)
Malta has designated the Mater Dei Hospital (MDH) as a National Coordination Hub for ERNs and MetabERN has been nominated by six associated national centres.
MetabERN Affiliated Partners (AP) Read More »
Call for membership to the existing ERNs
Wishing to become a member of the ERNS? The European Commission will launch in the coming weeks the first call for new members to join the existing 24 ERNs.
Call for membership to the existing ERNs Read More »
Medical Executive Board Meeting
The Medical Executive Board met in Brussels with representatives of the Subnetworks, Work Packages and the Patient Board as well as the Coordinator and Vice-Coordinators.
Medical Executive Board Meeting Read More »
CDG and immune response: From bedside to bench and back
A study identifies 23 CDG types with immune involvement, highlighting infection risks and potential therapeutic targets.
CDG and immune response: From bedside to bench and back Read More »
The 2nd webinar on transition CEMA UZA Belgium by Ann VERHAEGEN and Elien RAETS
The presentation of the second webinar on transition – Center of Inherited Metabolic Diseases CEMA UZA Belgium by Ann VERHAEGEN and Elien REATS
The 2nd webinar on transition CEMA UZA Belgium by Ann VERHAEGEN and Elien RAETS Read More »
Webinar on the Transition from Childhood to Adulthood
The presentations from our first and second webinar on the transition from childhood to adulthood, a MetabERN/SSIEM collaboration.
Webinar on the Transition from Childhood to Adulthood Read More »
CPMS Technical Requirements Guide ver.9
The new CPMS technical guide includes recommended browsers for best user experience, IP addresses to be whitelisted by Hospitals and bandwidth requirements.
CPMS Technical Requirements Guide ver.9 Read More »
MPS Awareness Day: What is your MPS Challenge?
The European patient organisation MPS Europe has asked people with MPS, their relatives and their physicians: What is your MPS Challenge?
MPS Awareness Day: What is your MPS Challenge? Read More »
MetabERN has been granted the second call for INEA/CEF
MetabERN was granted the second call for INEA/CEF for a total of 210.000 euros. The project proposed to the evaluators will focus on three main activities: the CPMS, e-Learning and telemedicine.
MetabERN has been granted the second call for INEA/CEF Read More »
ERN activity Report for the month of March 2019
ERN activity report of the European Collaborative Platform and Clinical Patient Management System usage for the month of March.
ERN activity Report for the month of March 2019 Read More »
