Brain Energy Metabolism Dialogue
The Brain Metabolism Dialogues webinar on brain energy metabolism with Dr Luis Felipe Barros Olmedo and expert panellists on 30 June 2025.
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Recognising Fabry Disease in Cardiology
Free video lectures by UZA and MetabERN on recognising Fabry disease in cardiology, covering genetic aspects and clinical red flags for cardiologists.
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Rare Neurotransmitter Diseases (RND) Researchers Forum
A forum on rare neurotransmitter diseases in Zagreb on 16 May 2025, bringing together researchers, clinicians, patients and caregivers.
Rare Neurotransmitter Diseases (RND) Researchers Forum Read More »
International Drug Repurposing Conference – iDR25
A conference on drug repurposing featuring AI, clinical trial design and patient access, held in Amsterdam on 7–8 May 2025.
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‘Towards an EU action plan on rare diseases’ Conference
A high-level conference on EU rare diseases policy held in Warsaw on 10 April 2025 under the Polish Presidency of the EU Council.
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Tyrosinemia Type 1 – webinar hosted by the AOA Subnetwork
A webinar on Tyrosinemia Type 1 from a neurometabolic perspective, organised by the MetabERN AOA Subnetwork on 27 May 2025.
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Building a Research and Innovation Ecosystem for Rare Diseases
A European Parliament hearing on building a research and innovation ecosystem for rare diseases, organised by Brains4Brain Foundation on 29 April 2025.
Building a Research and Innovation Ecosystem for Rare Diseases Read More »
European Parliament Consultation on Rare Diseases
A public consultation by the European Parliament’s SANT Committee to gather insights on rare disease challenges, open until 31 March 2025.
European Parliament Consultation on Rare Diseases Read More »
Dialogue Between Physics and Metabolism in Brain Functions
A webinar exploring how physical processes regulate brain metabolism and their relevance to inherited metabolic disorders, on 24 March 2025.
Dialogue Between Physics and Metabolism in Brain Functions Read More »
Recordati advanced course on liver and liver-kidney transplantation for inherited metabolic disorders
A Recordati Rare Disease Foundation course on liver and liver-kidney transplantation for inherited metabolic disorders in London, 12–14 June 2025.
Brain Metabolism Dialogues – webinar series
A joint MetabERN and SSIEM webinar series bridging clinical neurology and basic scientific research in brain metabolism.
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#UNIAMOleforze campaign: a Rare Diseases Day Event Held in Udine Castle
A Rare Disease Day event held at Udine Castle on 11 February 2025, organised by UNIAMO in collaboration with MetabERN.
#UNIAMOleforze campaign: a Rare Diseases Day Event Held in Udine Castle Read More »
