International Drug Repurposing Conference – iDR25
A conference on drug repurposing featuring AI, clinical trial design and patient access, held in Amsterdam on 7–8 May 2025.
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News
‘Towards an EU action plan on rare diseases’ Conference
A high-level conference on EU rare diseases policy held in Warsaw on 10 April 2025 under the Polish Presidency of the EU Council.
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Tyrosinemia Type 1 – webinar hosted by the AOA Subnetwork
A webinar on Tyrosinemia Type 1 from a neurometabolic perspective, organised by the MetabERN AOA Subnetwork on 27 May 2025.
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Building a Research and Innovation Ecosystem for Rare Diseases
A European Parliament hearing on building a research and innovation ecosystem for rare diseases, organised by Brains4Brain Foundation on 29 April 2025.
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European Parliament Consultation on Rare Diseases
A public consultation by the European Parliament’s SANT Committee to gather insights on rare disease challenges, open until 31 March 2025.
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Dialogue Between Physics and Metabolism in Brain Functions
A webinar exploring how physical processes regulate brain metabolism and their relevance to inherited metabolic disorders, on 24 March 2025.
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Recordati advanced course on liver and liver-kidney transplantation for inherited metabolic disorders
A Recordati Rare Disease Foundation course on liver and liver-kidney transplantation for inherited metabolic disorders in London, 12–14 June 2025.
Brain Metabolism Dialogues – webinar series
A joint MetabERN and SSIEM webinar series bridging clinical neurology and basic scientific research in brain metabolism.
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#UNIAMOleforze campaign: a Rare Diseases Day Event Held in Udine Castle
A Rare Disease Day event held at Udine Castle on 11 February 2025, organised by UNIAMO in collaboration with MetabERN.
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ERICA ERN Research Conference hosted by MetabERN
The ERICA ERN Research Conference, hosted by MetabERN in Udine from 11 to 13 December 2024, gathered 178 participants from all 24 ERNs.
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MetabERN Board Meeting 2024: updates from Budapest
MetabERN recently hosted its annual three-day board meeting in Budapest. This successful event brought together approximately 100 participants.
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Highlights from Our Impactful Month of Collaborations and Meetings
The last couple of months were an eventful and enriching time for our team as we participated in three significant meetings that brought together professionals dedicated to improving care for patients with inherited metabolic disorders (IMDs). Each meeting provided a unique opportunity to engage with experts and patient representatives, share knowledge, and discuss critical topics for
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