Historical position statement from 24 ERN coordinators emphasizing the crucial need for European collaboration in rare disease treatment.
Position statement from the European Reference Networks (ERNs) Network Coordinators Read More »
French-Canadian research team discovers “epi-cblC,” changing our understanding of how rare metabolic diseases can be inherited.
NEW LIGHT SHINES ON OUR UNDERSTANDING OF RARE DISEASES Read More »
MetabERN achieved its first virtual patient consultation via the Clinical Patient Management System, marking a new era in rare disease care.
The first MetabERN virtual patients consultation has successfully taken place Read More »
MetabERN’s first meeting with Patient and Family Associations established a framework for collaborative rare disease care development.
MetabERN held its first meeting with Patient and Family Associations Read More »
Please download and read the attached document about Metabolic Diseases: Jimmy and metabolic disease (NL) Comic book
Jimmy and metabolic disease (NL) Comic book Read More »
The European Commission’s launch of the Clinical Patient Management System created a new framework for cross-border rare disease care.
The first version for the Clinical Patient Management System (CPMS) is live! Read More »
Webinar Clinical Pathway Recommendations Webinar Clinical Pathway Recommendations by Ursula Plöckinger on CPR.
Webinar Clinical Pathway Recommendations Read More »
The 14th International Congress of Inborn Errors of Metabolism announces key dates for its August 2021 scientific gathering.
ICIEM: 14th International Congress of Inborn Errors of Metabolism Read More »
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