The ERA-Net E-Rare has successfully implemented ten Joint Transnational Calls for rare disease research projects since 2006.
PRE-CLINICAL RESEARCH TO DEVELOP EFFECTIVE THERAPIES FOR RARE DISEASES Read More »
Sant Joan de Deu Hospital (Barcelona, Spain), one of the 69 MetabERN healthcare providers, has opened a clinical trial that recruits patients for an open-label study in male pediatric patients with cerebral X-LINKED ADRENOLEUKODYSTROPHY (cALD) to assess the effect of a new experimental treatment on the progression of cerebral lesions.
X-LINKED ADRENOLEUKODYSTROPHY | Clinical Trial Read More »
The NCL Foundation offers €50,000 for research on CLN3 disease. Junior scientists and clinicians can apply by 30 Nov 2019.
NCL Research Award 2019 Read More »
The call for new ERN members is open until 3 Dec 2019. Key documents for the application process are now available.
Three Key Documents: Call for membership to existing ERNs Read More »
Malta has designated the Mater Dei Hospital (MDH) as a National Coordination Hub for ERNs and MetabERN has been nominated by six associated national centres.
MetabERN Affiliated Partners (AP) Read More »
Wishing to become a member of the ERNS? The European Commission will launch in the coming weeks the first call for new members to join the existing 24 ERNs.
Call for membership to the existing ERNs Read More »
The Medical Executive Board met in Brussels with representatives of the Subnetworks, Work Packages and the Patient Board as well as the Coordinator and Vice-Coordinators.
Medical Executive Board Meeting Read More »
A study identifies 23 CDG types with immune involvement, highlighting infection risks and potential therapeutic targets.
CDG and immune response: From bedside to bench and back Read More »
The presentation of the second webinar on transition – Center of Inherited Metabolic Diseases CEMA UZA Belgium by Ann VERHAEGEN and Elien REATS
The 2nd webinar on transition CEMA UZA Belgium by Ann VERHAEGEN and Elien RAETS Read More »
The presentations from our first and second webinar on the transition from childhood to adulthood, a MetabERN/SSIEM collaboration.
Webinar on the Transition from Childhood to Adulthood Read More »
The new CPMS technical guide includes recommended browsers for best user experience, IP addresses to be whitelisted by Hospitals and bandwidth requirements.
CPMS Technical Requirements Guide ver.9 Read More »
The European patient organisation MPS Europe has asked people with MPS, their relatives and their physicians: What is your MPS Challenge?
MPS Awareness Day: What is your MPS Challenge? Read More »
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