CDG Patient Groups and Advocates
A comprehensive overview of CDG patient advocacy groups and representatives working to advance awareness, research and treatment options.
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Networks
CDG & Allies – Professionals and Patient Associations International Network (CDG & Allies- PPAIN)
An international network uniting professionals and patient associations to advance research in Congenital Disorders of Glycosylation.
Inpda: International Niemann–Pick Disease Alliance
A worldwide alliance of non-profit organizations providing support and advancing research for Niemann-Pick Disease communities.
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HCU Network Australia
An Australian network dedicated to supporting patients with Classical Homocystinuria while advancing research toward effective treatments.
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E.S.PKU
A parent-founded European organization uniting 41 national PKU associations to advance care and quality of life for PKU communities.
