RDD2024

MetabERN supports Rare Disease Day 2024

On the last day of February of every year, the international, patient-led awareness campaign organised by EURORDIS brings together millions of people worldwide in solidarity with the rare disease community.

This year, the MetabERN patient group shared their stories and experiences in a video message aimed at expressing support for Rare Disease Day 2024 and raising awareness of rare metabolic diseases.

We are extremely grateful for the contributions made by our patient members, sharing a message of unity and strength!

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