On behalf of our Priority Setting Partnership, I would like to share our questionnaire to set research priorities for liver GSD: http://tiny.cc/IGSD-English
Let us know where you think research should be directed in the future. It will take just 5 minutes to complete and is open to anyone with a personal or professional connection to liver GSD.
We presented this initiative during the IGSD2017 conference in Groningen. It is an independent & transparent James Lind Alliance process, well respected by the National Institute for Health Research (NIHR) and other research funders, as it is an inclusive consultation giving the whole community the opportunity to develop a list of Top 10 research priorities. The goal is to set research priorities for liver GSDs. For more information on the James Lind Alliance visit their website (http://www.jla.nihr.ac.uk).
Your participation would be greatly acknowledged. Please also forward this email on to anyone else that you know with a connection to liver GSD so that we can receive a good level of responses from the whole community. For more information send an email to igsdpsp@gmail.com or visit our website http://igsdpsp.com.
