Patients and specialists of Anderson-Fabry disease will meet in Florence on March 28th-29th, for the Annual Italian Meeting organized by AIAF Onlus.
Italian National Meeting for Fabry Patients | 28-29 March 2020 Read More »
On October 24, at 14:00 (CET), there will be a CPMS Webinar on the upcoming changes. Be sure not to miss it. Click on the article to get more details.
CPMS: Upcoming Changes | 24 October 2019 Read More »
The misdiagnosis of metabolic diseases\’ webinars are free, and a certificate of attendance will be provided by the for those who attend all sessions.
Misdiagnosis of Metabolic Diseases Course Read More »
The International Course Training on strategies to foster solutions of undiagnosed rare disease cases is part of a series of training activities.
The Portuguese Association for CDG (APCDG) has developed 2 short surveys to assess the needs and solutions for future therapies among CDG Families and Professionals.
Surveys developed by the Portuguese Association for CDG Read More »
A comprehensive webinar from CEMA UZA Belgium explores protocols and challenges in transitional care for metabolic disease patients.
Second Webinar on the Transition in IMDs – Presentation Read More »
Annual meeting documentation detailing progress reports for MetabERN’s Workpackage 2 and Workpackage 7 initiatives.
MetabERN Annual Meeting – Work progress of Workpackage 2 and 7 Read More »
A collaborative workshop at Hospital 12 de Octubre Madrid sharing practical guidance and recipes for managing low protein diets.
2nd Low Protein Diet Course | 29 March 2019 Read More »
A comprehensive questionnaire gathering patient perspectives on clinical trials across the European rare metabolic disease network.
MetabERN Survey – Patients’ Perspective of Clinical Trials Read More »
Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point Rare Disease Day in their life.
Rare Disease Day 2019 | 28 February 2019 Read More »
A February 19 training session introducing the new Clinical Patient Management System 17.0 features for all ERN network members.
CPMS 17.0 Webinar | 19th February 2019 – 14:00 CET Read More »
The February 4-8 annual symposium in Orlando brings together global experts to discuss latest advances in lysosomal disease research.
15th Annual WORLDSymposium | 4-8 February 2019 Read More »
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