L’obiettivo degli incontri è condividere la nostra esperienza in materia di helpline – servizi di ascolto, informazione e orientamento per le malattie rare, e fornire alcuni strumenti per interpretare al meglio il ruolo di ascolto ed empatia richiesto da questo tipo di servizio da parte delle Associazioni.
NS2 – “New Challenges, New Services” | April 5-6 2019 Read More »
SSIEM Academy course will be held in Winterthur (near Zurich), Switzerland on the 29th and 30th April 2019.
SSIEM ACADEMY COURSE | 29 – 30 April 2019 Read More »
The 7th Fabry expert meeting will take place in Barcelona, Spain. It brings together patient organisations and professionals working within the area of Fabry disease.
7th Fabry Expert Meeting | 21/22 – 26 May 2019 Read More »
A multidisciplinary scientific conference in Catalonia exploring advances in one-carbon metabolism, B vitamins and homocysteine research.
12th International Conference on Homocysteine | 9-13 June Read More »
A landmark Madrid congress combining adult and pediatric rheumatology expertise through EULAR and PReS collaboration.
EULAR 2019, 12-15 June | Madrid, Spain Read More »
A specialized course in Santiago de Compostela training pediatricians to diagnose and manage inherited metabolic disorders in newborns.
Inborn Errors of Metabolism in Neonatology | 13-15 June 2019 Read More »
A comprehensive two-week pediatric medicine program in Groningen combining innovative lectures with hands-on clinical research experience.
Summer School on Paediatrics, 3-12 July 2019 | Groningen Read More »
A Swiss educational program bringing together experts and researchers to advance rare disease understanding through lectures and workshops.
7th radiz Rare Disease Summer School | 10-12 July 2019 Read More »
In this Satellite Meeting, professionals will discuss the necessity for a clear CDG definition, the CDG Nomenclature and Nosology (classification of a list of diseases).
1st CDG Satellite Meeting, 25th July 2019 | Lisbon Read More »
4th World Conference on Congenital Disorders of Glycosylation (CDG) for families and professionals: \”The CDG road: from diagnosis to therapies\” Lisbon, Portugal – 26 and 27 July 2019.
4th World Conference on CDG, 26-27 July 2019 | Lisbon Read More »
The September 2019 SSIEM Symposium in Rotterdam connected experts and new scientists to advance metabolic disease research.
SSIEM 2019 Annual Symposium | 3-6 September Read More »
The International Congress on Porphyrins and Porphyrias 2019 in Milan, will take place at the University of Milan from 8th to 11th September 2019.
International Congress on Porphyrins and Porphyrias 2019 Read More »
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