Annual MetabERN Board meeting starting on Thursday 4 April (start time 14.00) to Saturday 6 April (finishing at 13.00).Â
Annual MetabERN Board Meeting, 4-6 April 2019 | Frankfurt Read More »
The 2019 SSIEM NGS Course will take place at the University of Barcelona, Faculty of Medicine, 18th to 20th March 2019. The first day will start at 11:30h.
SSIEM NGS Course | 18-20 March 2019 Read More »
L’obiettivo degli incontri è condividere la nostra esperienza in materia di helpline – servizi di ascolto, informazione e orientamento per le malattie rare, e fornire alcuni strumenti per interpretare al meglio il ruolo di ascolto ed empatia richiesto da questo tipo di servizio da parte delle Associazioni.
NS2 – “New Challenges, New Services” | April 5-6 2019 Read More »
SSIEM Academy course will be held in Winterthur (near Zurich), Switzerland on the 29th and 30th April 2019.
SSIEM ACADEMY COURSE | 29 – 30 April 2019 Read More »
The 7th Fabry expert meeting will take place in Barcelona, Spain. It brings together patient organisations and professionals working within the area of Fabry disease.
7th Fabry Expert Meeting | 21/22 – 26 May 2019 Read More »
A multidisciplinary scientific conference in Catalonia exploring advances in one-carbon metabolism, B vitamins and homocysteine research.
12th International Conference on Homocysteine | 9-13 June Read More »
A landmark Madrid congress combining adult and pediatric rheumatology expertise through EULAR and PReS collaboration.
EULAR 2019, 12-15 June | Madrid, Spain Read More »
A specialized course in Santiago de Compostela training pediatricians to diagnose and manage inherited metabolic disorders in newborns.
Inborn Errors of Metabolism in Neonatology | 13-15 June 2019 Read More »
A comprehensive two-week pediatric medicine program in Groningen combining innovative lectures with hands-on clinical research experience.
Summer School on Paediatrics, 3-12 July 2019 | Groningen Read More »
A Swiss educational program bringing together experts and researchers to advance rare disease understanding through lectures and workshops.
7th radiz Rare Disease Summer School | 10-12 July 2019 Read More »
In this Satellite Meeting, professionals will discuss the necessity for a clear CDG definition, the CDG Nomenclature and Nosology (classification of a list of diseases).
1st CDG Satellite Meeting, 25th July 2019 | Lisbon Read More »
4th World Conference on Congenital Disorders of Glycosylation (CDG) for families and professionals: \”The CDG road: from diagnosis to therapies\” Lisbon, Portugal – 26 and 27 July 2019.
4th World Conference on CDG, 26-27 July 2019 | Lisbon Read More »
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