On November 3rd the first meeting of the subnetwork for Lysosomal Storage Diseases (LSDs) of MetabERN will take place in Rotterdam, the Netherlands.
Lysosomal Storage Disease Subnetwork Meeting, 3 November 2018 Read More »
This Winter School is organised as part of the “Next Generation Life Scientists” Graduate School of Research.
Winter School “MITOCHONDRIA IN HEALTH AND DISEASE” 17-21 December 2018 Read More »
The November 2018 webinar provided essential training for new users of the Clinical Patient Management System platform.
CPMS Webinar For New Users – 20th November 2018 Read More »
The E.S.PKU Conference 2018 will take place, at Hotel NH Venezia Laguna Palace, Venice, Italy, from November 1st to November 4th.
E.S.PKU Conference, 1-4 November 2018 Read More »
The July 2018 Brussels roundtable brought together experts and policymakers to advance European initiatives for PKU patient care.
PKU Policy Roundtable Final Report, 11 July 2018 Read More »
It is with great pleasure that I welcome you all to the 30th Annual ESPKUConference here in Dublin, Ireland. This is the first time we have been here andwe really appreciate their enthusiasm in going all out to hold the Conference. Theyhave worked tremendously hard in such a short space of time to get things
30th E.S.PKU Conference Read More »
Post-Conference Infos E.S.PKU Conference 2015 is already history. We are very proud to have welcome over 450 participants to Berlin, Germany. As the conference has passed we want to provide additional information for you on this dedicated page. You will find more information about the presentations. We understand that you might be interested to get
E.S. PKU Learn more about the 29th annual conference Read More »
The Romanian Foundation for Lysosomal Diseases (FRBL), founded in 1998 in Cluj-Napoca, has marked 20 years since its inception.
The Romanian Foundation for Lysosomal Diseases turns 20 Read More »
The October 2018 webinar provided essential training for new MetabERN members using the Clinical Patient Management System.
CPMS for New Users, 16th October 2018 Read More »
The October 2018 Cagliari conference empowered Sardinian rare disease patient associations through training and collaboration.
SAVE THE DATE – LA VOCE DEL PAZIENTE RARO, OCTOBER 26, 2018 Read More »
The November 2018 ERN-LUNG webinar shared expertise on clinical trials network development using cystic fibrosis as example.
Save the Date – ERN Lung Webinar, 20th of November from 14h – 16h CET Read More »
The September 2018 Expert Panel hearing explored expanding European Reference Networks beyond rare disease healthcare delivery.
Effective ways of Investing in Health, Expert Panel, 25 September 2018 Read More »
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