NEW FREE-TO-VIEW LIVE WEBINARS
The Multidisciplinary Team Approach to MPS Patient Care, Treatment and Support
Enhancing the Quality of Life of Persons Affected by Mucopolysaccharide Across Europe
By taking a multidisciplinary healthcare team approach we can better understand how to work with colleagues to support patients with MPS with their everyday healthcare needs, as well as by having a better understanding of the latest treatment options. The Education Program is an MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics.
MODULE 2
A Personal Perspective Understanding the MPS Patient’s Needs
Wednesday 27 May 2020
13:00 Central European Summer Time
Duration: 40 min
• MICHAELA WEIGL, Austrian MPS Society, Austria
• OSKAR AHLBERG, Swedish MPS Association, Sweden
More Information and Learning Objectives
MODULE 3
Role of Paediatricians. Managing the MPS Patient with Everyday Health Issues
Wednesday 3 June 2020
13:00 Central European Summer Time
Duration: 30 min
• SIMON JONES, Royal Manchester Children’s Hospital, UK
• JANE ROBERTS, Royal Manchester Children’s Hospital, UK
More Information and Learning Objectives
MODULE 4
Psychological Care for the Child and Family with MPS Disorder
Wednesday 10 June 2020
13:00 Central European Summer Time
Duration: 30 min
• STEWART RUST, Royal Manchester Children’s Hospital, UK
More Information and Learning Objectives
MODULE 5
Advances in Treatments Available for MPS
Wednesday 17 June 2020
13:00 Central European Summer Time
Duration: 30 min
• FLORIAN LAGLER, Paracelsus Medical University, Austria
More Information and Learning Objectives
MODULE 6
The MPS Patient’s Transition from Childhood to Adulthood – Practical Advice for Paediatricians
Wednesday 24 June 2020
13:00 Central European Summer Time
Duration: 30 min
• CHRISTINA LAMPE, University Hospital of Gießen, Germany
More Information and Learning Objectives
You can also watch the videos of the recorded webinars from the previous series
Challenges in Diagnosis and Management of MPS and Alpha-mannosidosis
(5 webinars)
