Informative Materials
MetabERN is dedicated to increasing public awareness of Inherited Metabolic Disorders and the European Reference Networks (ERNs), while also promoting a strong support network. In this section you can find a range of informative brochures that provide clear insights and practical guidance on cross-border healthcare and the function of the ERNs.
MetabERN’s Informative Brochure
Informative Leaflet for Patients
UIMD Registry Informative Leaflet
European Reference Networks Brochure
Factsheet on EU Action on Rare Diseases
European Reference Networks Booklet
European Commission Factsheet
EU for rare diseases patients & families
