University Hospital of Birmingham NHS Foundation Trust

Birmingham, UK

Area of expertise and the Healthcare Provider’s contribution to care for patients within the MetabERN Network

University Hospitals Birmingham NHS Foundation Trust contains experts in the field of metabolic diseases. As well to expert clinicians and consultants, the Trust has a highly specialised multi-disciplinary team of:

  • Nurses
  • Dieticians
  • Physiotherapists
  • Pharmacists
  • Psychologists
  • Other allied health professions

who all contribute to the expertise of the Metabolic service.

The Trust hosts:

  • The largest solid organ transplantation programme in Europe
  • The largest renal transplant programme in the United Kingdom
  • A national specialist centre for heart and liver transplantation

The Trust has recently opened its Centre for Rare Diseases, a clinical facility that brings together multi-speciality and multi-disciplinary teams to deliver the best care for rare disease patients.

As well as a wealth of clinical expertise, the Trust is highly active in the fields of national and international research. The Trust undertakes:

  • Observational and interventional studies
  • Disease registries
  • Drug trials (including phase 1-3 trials)
  • Medical device trials

These studies are mixture of industry led and investigator led studies.

Current projects:

  • Investigation Medicinal Product trial for Alstrom Syndrome (Dr Tarek Hiwot as Chief Investigator)
  • Coordinating partner for an EC funded project ‘An EU rare diseases registry for Niemann-Pick Disease type A, B and C. (NPDR)’

Specific treatments and interventions provided by the HCP

University Hospitals Birmingham NHS Foundation Trust provides a number of comprehensive treatments and interventions for metabolic disorders:

  • Enzyme replacement therapies for Lysosomal Storage Disorder patients
  • Specific treatments for all metabolic conditions
  • Active participation in clinical trials for metabolic conditions
  • One Stop Clinics, where all applicable testing and investigations can be conducted during a clinic visit, negating the need for multiple appointments at multiple centres
Address

Queen Elizabeth Hospital, Mindelsohn Way, Birmingham B15 2GW, United Kingdom

Representatives

Tarekegn G. Hiwot

Tarekegn G. Hiwot

University Hospital of Birmingham NHS Foundation Trust

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