On November 21 and 22, the 4th Conference on European Reference Networks took place in Brussels, Belgium.
4th Conference on European Reference Networks, 21 -22 November, 2018 Read More »
On November 3rd the first meeting of the subnetwork for Lysosomal Storage Diseases (LSDs) of MetabERN will take place in Rotterdam, the Netherlands.
Lysosomal Storage Disease Subnetwork Meeting, 3 November 2018 Read More »
This Winter School is organised as part of the “Next Generation Life Scientists” Graduate School of Research.
Winter School “MITOCHONDRIA IN HEALTH AND DISEASE” 17-21 December 2018 Read More »
The July 2018 Brussels roundtable brought together experts and policymakers to advance European initiatives for PKU patient care.
PKU Policy Roundtable Final Report, 11 July 2018 Read More »
Analysis of European Union legislation governing the development and authorization of medicines for rare and pediatric diseases.
Evaluation of the legislation on medicines for children and rare diseases Read More »
The Romanian Foundation for Lysosomal Diseases (FRBL), founded in 1998 in Cluj-Napoca, has marked 20 years since its inception.
The Romanian Foundation for Lysosomal Diseases turns 20 Read More »
The October 2018 webinar provided essential training for new MetabERN members using the Clinical Patient Management System.
CPMS for New Users, 16th October 2018 Read More »
The November 2018 ERN-LUNG webinar shared expertise on clinical trials network development using cystic fibrosis as example.
Save the Date – ERN Lung Webinar, 20th of November from 14h – 16h CET Read More »
Modern Management of Inherited Metabolic Disorders course hosted by Recordati on in Rio de Janeiro, Brazil 18 – 20 October 2018.
Modern Management of Inherited Metabolic Disease Read More »
Scientific and technological advancements are rapidly enabling neonatal screening for ever more congenital conditions to become available.
11th ISNS Meeting, Reliability of Screening Results Read More »
The October 2018 #rarestars campaign showcased healthcare professionals dedicated to improving Gaucher disease patient care.
International Gaucher Day. Follow the campaign Read More »
European training network offering interdisciplinary PhD positions in Systems Medicine research for inherited metabolic disorders.
PhD positions for the Marie-Curie Innovative Training Network Read More »
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