Rare Disease Day 2019 | 28 February 2019
Building awareness of rare diseases is so important because 1 in 20 people will live with a rare disease at some point Rare Disease Day in their life.
Rare Disease Day 2019 | 28 February 2019 Read More »
CPMS 17.0 Webinar | 19th February 2019 – 14:00 CET
A February 19 training session introducing the new Clinical Patient Management System 17.0 features for all ERN network members.
CPMS 17.0 Webinar | 19th February 2019 – 14:00 CET Read More »
15th Annual WORLDSymposium | 4-8 February 2019
The February 4-8 annual symposium in Orlando brings together global experts to discuss latest advances in lysosomal disease research.
15th Annual WORLDSymposium | 4-8 February 2019 Read More »
RARE2019, 4-5 March 2019 | Vienna, Austria
A Vienna congress uniting global rare disease experts to discuss treatment advances, clinical trials and patient-focused innovation.
RARE2019, 4-5 March 2019 | Vienna, Austria Read More »
NS2 – “New Challenges, New Services” | April 5-6 2019
L’obiettivo degli incontri è condividere la nostra esperienza in materia di helpline – servizi di ascolto, informazione e orientamento per le malattie rare, e fornire alcuni strumenti per interpretare al meglio il ruolo di ascolto ed empatia richiesto da questo tipo di servizio da parte delle Associazioni.
NS2 – “New Challenges, New Services” | April 5-6 2019 Read More »
12th International Conference on Homocysteine | 9-13 June
A multidisciplinary scientific conference in Catalonia exploring advances in one-carbon metabolism, B vitamins and homocysteine research.
12th International Conference on Homocysteine | 9-13 June Read More »
Summer School on Paediatrics, 3-12 July 2019 | Groningen
A comprehensive two-week pediatric medicine program in Groningen combining innovative lectures with hands-on clinical research experience.
Summer School on Paediatrics, 3-12 July 2019 | Groningen Read More »
7th radiz Rare Disease Summer School | 10-12 July 2019
A Swiss educational program bringing together experts and researchers to advance rare disease understanding through lectures and workshops.
7th radiz Rare Disease Summer School | 10-12 July 2019 Read More »
1st CDG Satellite Meeting, 25th July 2019 | Lisbon
In this Satellite Meeting, professionals will discuss the necessity for a clear CDG definition, the CDG Nomenclature and Nosology (classification of a list of diseases).
1st CDG Satellite Meeting, 25th July 2019 | Lisbon Read More »
SSIEM 2019 Annual Symposium | 3-6 September
The September 2019 SSIEM Symposium in Rotterdam connected experts and new scientists to advance metabolic disease research.
SSIEM 2019 Annual Symposium | 3-6 September Read More »
Innovation Bootcamp in Rare Diseases | 3-5 November 2019
Innovation Bootcamp in rare diseases is taking place in Leuven on the 4-5 November in Leuven, Belgium.
Innovation Bootcamp in Rare Diseases | 3-5 November 2019 Read More »
16th Joint EMAEUnetHTA Meeting | 7 December 2018
The December 2018 meeting between EMA and EUnetHTA addressed key aspects of evidence generation and assessment in Europe.
16th Joint EMAEUnetHTA Meeting | 7 December 2018 Read More »
