MetabERN contributed to discussions on personalizing healthcare through rare disease expertise at the 20th European Health Forum Gastein.
Professor Derks launches an initiative gathering community input to establish research priorities for liver Glycogen Storage Disease.
Message from Prof Terry Derks, Metabolic Diseases Groningen Read More »
Healthcare experts and patient representatives gathered to address key challenges in Glycogen Storage Disease management and research.
The 3rd World Conference on CDG brought together 51 families and 73 professionals to advance understanding and treatment worldwide.
The 3rd World Conference on CDG for families and professionals Read More »
Professor Maurizio Scarpa appointed as first Chairman of the European Reference Networks Board of Coordinators in historic decision.
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