Chafea organised a kick-off meeting for five new rare diseases’ registries in Luxembourg on the 17th of April 2018, which involved 40 participants.
Chafea organised kick-off meeting for five new rare diseases’ registries Read More »
We are pleased to announce that the EHFG would like to once more offer a number of Young Forum Gastein scholarships to attend the 21st EHFG.
The April 2018 UCL conference gathered international experts to explore innovative treatments for rare inherited metabolic disorders.
6th Novel Therapies for Inherited Metabolic Diseases Meeting, London, 28th April 2018 Read More »
The topics of the 2018 Academy will be: Lysosomal storage disorders, Peroxisomal disorders, Purine and Pyrimidine disorders.
SSIEM Academy Course, London, 23rd-24th April 2018 Read More »
The ISIMD Annual Conference 2018 is on Friday 20th April 2018 in the Pillar Room, Rotunda Hospital.
Irish Society of IMD Annual Conference, Dublin, 2018 Read More »
April 2018 conference in Northampton brought together experts and families to discuss MPS I and II management and treatment options.
MPS I and II Expert and Patient Meeting, 28-29 April 2018 Read More »
The annual meeting will be focusing on the achievements of the first year of MetabERN activities, the definition of the final report, the starting and planning of the second year of activities…
Annual MetabERN Meeting, FRANKFURT at the Lindner Congress Hotel on April 9-10th, 2018 Read More »
Health Commissioner Andriukaitis evaluates the first year of ERN operations and outlines key challenges for rare disease networks.
RARE DISEASE NETWORKS, ONE YEAR IN Read More »
May 2018 postgraduate training in Nierstein offered comprehensive education on LSDs with leading experts for early-career physicians.
A critical request for blood and urine samples from metabolic disorder patients to maintain high quality diagnostic laboratory standards.
ERNDIM’s plea for samples of Inborn Errors of Metabolism patients Read More »
The European Cystinosis Conference will take place in Berlin this year between the 13th and 15th of July.
The European Cystinosis Conference, July 13 – 15, 2018 Read More »
In February 2018, a European Parliamentary Meeting gathered healthcare leaders to improve diagnostic timelines for rare diseases.
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