MetabERN was granted the second call for INEA/CEF for a total of 210.000 euros. The project that was proposed to the evaluators will focus on three main activities:

1) The development and implementation of metabolic data sets to improve the use of the Clinical Patient Management System (CPMS). This is enabled through disease-specific case descriptions with minimal data sets which are essential to facilitate access to highly specialised knowledge and care for patients suffering from rare and severe diseases;

2) The development and implementation of case-oriented e-learning/e-training within MetabERN;

3) The generation of interconnectivity in the entire care chain between IEM-patients, primary care physicians, local hospitals and the centres of expertise to prevent metabolic emergencies.

The consortium is made up by University Medical Center Groningen, Groningen, the Netherlands (Dr Terry G. J. Derks), Medical Faculty of Ottovon- Guericke University Magdeburg, Germany (Dr Klaus Mohnike) and University Hospital Santa Maria della Misericordia (ASUIUD) (Prof. Maurizio Scarpa, Coordinator MetabERN).