May 16th is the World Congenital Disorders of Glycosylation (CDG) Day. The worldwide CDG community joins efforts around this day to put together global awareness and education.
This year’s new campaign theme #StandUnited4CDG is designed to convey the importance of unity and collaboration to support one another around our shared values and goals.
Congenital Disorders of Glycosylation (CDG) are a family of rare metabolic disorders. There are approximately 140 different forms and the great majority still do not have therapy.
This video is dedicated to the memory of Estelle & Temperance Blechynden and to help raise awareness for the rare genetic disorder PMM2-CDG. CDG is a serious disease that encompasses a wide variety of disorders and symptoms. There is no specific therapy for most forms of CDG. Proudly supporting May 16 as World CDG Awareness Day.
