10th ECRD | Online, 14-15 May 2020

ECRD 2020 overarching theme & six parallel themes
“The journey of living with a rare disease in 2030”

The rare disease community has made great strides towards improving diagnosis, care and treatment for people living with a rare disease in recent decades, but without vigilance and constant effort, progress can easily be reversed. The health of 30 million people living with a rare disease in Europe should not be left to luck or chance.

The ECRD 2020 theme “The rare disease patient journey in 2030” recognises that the next decade holds great potential for improvement and that while we cannot predict the future, we all have a role in preparing for it. See the full ECRD programme built around these six parallel themes:

1. The future of diagnosis: new hopes, promises and challenges
2. Our values, our rights, our future: shifting paradigms towards inclusion
3. Share, Care, Cure: Transforming care for rare diseases by 2030
4. When therapies meet the needs: enabling a patient-centric approach to
therapeutic development
5. Achieving the triple A’s by 2030: Accessible, Available and Affordable Treatments
for people living with a rare disease
6. The digital health revolution: hype vs. reality