E.S.PKU Conference, 1-4 November 2018

The E.S.PKU Conference 2018 will take place, at Hotel NH Venezia Laguna Palace, Venice, Italy, from November 1st to November 4th.

Programme for ESPKU member’s delegates

Country update: What has been achieved since 2016?
Health Technology Assessment:- why payers are keen to use it; what is a disease model; what is discounting: E Jessup
Transition: development of a white paper
ESPKU All Party Parliamentary Group
ESPKU General Meeting

Programme for Professionals

New diagnostic work-up for infants with positive heelpuncture for phenylalanine: Nenad Blau
Phenylalanine measurement: can we do better? C.Meli (a paper measuring phe in urine)
Adult PKU patients’ outcome: Francois Maillot
Different methods to test neuropsychological outcome in PKU patients: Rianne Jahja
Adult PKU brain: what should be expected? Andrea Pilotto
What is the real cause of PKU brain dysfunction: van Vliet

This programme overview is preliminary and subject to change.