For Patients
Patients’ Voices
“Patients’ Voices” is a dedicated space where patients can share their stories and make their voices heard. It is a place that highlights the real impact of rare metabolic disease on daily life — both the physical and the emotional aspects. Through personal testimonies, patients can express their challenges as well as the ways they have managed to overcome them, offering support and hope to others who are facing similar experiences. Every voice has the power to inspire and to comfort!
Contributions can take different forms, such as videos or written stories.
