On 28 February 2025, the newly established Committee on Public Health (SANT) of the European Parliament launched an important public consultation focused on rare diseases.
The objective of this consultation is to inform the Committee’s upcoming initiatives by enhancing understanding and knowledge of the challenges encountered by individuals affected by rare diseases. Additionally, it seeks to gather insights from professionals and stakeholders involved in the rare disease community.
MetabERN invites you to engage in the consultation process by completing this survey. Your contributions can play a crucial role in shaping future policies, ultimately fostering a more inclusive and supportive healthcare system for those affected by rare diseases.
Open until 31 March 2025.
