The primary aim of the Fabry expert meeting is to facilitate collaboration between patient organisations around the world to support those affected by Fabry disease.


The primary aim of the Fabry expert meeting is to facilitate collaboration between patient organisations around the world to support those affected by Fabry disease.
A Rare Disease Day event held at Udine Castle on…
A webinar on emergency care and pain management for Sanfilippo…
A GLI webinar explored challenges in diagnosing and treating rare…
The MetabERN Coordination Office met in Brussels to discuss achievements,…
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