Second Adult MPS Patients Meeting | Report

The second Adult MPS patients meeting was held from 17th to 20th October 2019 in hotel West Point in Verona, Italy.

The goal of this meeting was to encourage adult MPS patients to be independent – Stand on their Own. MPS Europe provided 24 fellowships for MPS patients to participate the meeting. The fellowships covered travel costs, accommodation, transfer and meals. Participants age range was between 17 and 55 years from 10 different European countries.

This year we had a very busy agenda, from intensive psychological workshops, communication between patients and physicians, cross-border healthcare, education about clinical trials, drug development and gene therapies, to therapeutic exercises – Pilates. We also exchanged opinions about living in Europe with MPS and spent great time in sightseeing Verona and listening to MPS talents. Sessions were in English and translation to Italian and Spanish was provided by national MPS societies.

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Report second Adult MPS patients meeting