European Reference Networks
European Reference Networks (ERNs) help professionals and centres of expertise in different countries to share knowledge.
- apply EU criteria to tackle rare diseases requiring specialised care
- serve as research and knowledge centres treating patients from other EU countries
- ensure the availability of treatment facilities where necessary
On December 15th 2016, the European Commission announced the approval of the European Reference Network for Hereditary Metabolic Diseases (MetabERN), along with 24 other rare disease ERNs. The ERNs approval comes after years of collaboration and efforts between rare disease patients, clinical experts and policy makers in EU Member States, at the European Commission and the European Parliament to bring the ERNs to fruition.