Emergency situations are a major burden for many patients suffering from Inherited Metabolic Disorders and their families. Having an emergency letter and knowing how to use it can prevent life-threatening situations and will optimize communications between parents and doctors. This webinar aims to inform patients about the emegencyprotocol.net website, which offers a generator for emergency letters.
Webinar on the treatment with empagliflozin in patients with glycogen storage disease type Ib on 15 September 2020 at 16:00 - 17:30
The presentations from our first and second webinar on the transition from childhood to adulthood, a MetabERN/SSIEM collaboration.