4th World Conference on Congenital Disorders of Glycosylation (CDG) for families and professionals: "The CDG road: from diagnosis to therapies" Lisbon, Portugal - 26 and 27 July 2019.
4th World Conference on Congenital Disorders of Glycosylation (CDG) for families and professionals: "The CDG road: from diagnosis to therapies" Lisbon, Portugal - 26 and 27 July 2019.
The SSIEM 2019 Symposium will be held at the De Doelen, in Rotterdam, 3-6 September. The theme for this year's congress is Building Bridges.
The International Congress on Porphyrins and Porphyrias 2019 in Milan, will take place at the University of Milan from 8th to 11th September 2019.
Innovation Bootcamp in rare diseases is taking place in Leuven on the 4-5 November in Leuven, Belgium.
The 5th International GSD Conference (IGSD2019), taking place in Porto Alegre from 14-16 November 2019.
1st MetabERN Annual Meeting 2017: kick off meeting Attached documents
MetabERN Annual Meeting : The Work done in Work Package 7 Attached documents
On 7th December the European Medicines Agency hosted the 16th joint meeting with the European network for Health Technology Assessment (EUnetHTA). EMA and EUnetHTA have been holding regular dialogues since 2010 and they are an opportunity to progress the EMA/EUnetHTA work plan.
On November 21 and 22, the 4th Conference on European Reference Networks took place in Brussels, Belgium.
On November 3rd the first meeting of the subnetwork for Lysosomal Storage Diseases (LSDs) of MetabERN will take place in Rotterdam, the Netherlands.