Rare Disease Day Verona | A weekend programme, planned by AISMME, starting with a webinar on February 26th at 17:30 to 19:00.
Rare Disease Day webinar presented by Freiburg Centre for Rare Diseases on 26th February 2021 from 15:00 - 17:15
The EJP RD is glad to invite you to the information webinar organised for potential applicants to the Joint Transnational Call 2021 on “Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease”.
The objective of the EJPRD policy meeting is to kick off the discussion on the future Rare Diseases Partnership under Horizon Europe (HE).
ECRD 2020 overarching theme & six parallel themes, online on May 14-15, 2020 - "The journey of living with a rare disease in 2030"
MetabERN, as part of the capacity building and training activities, in collaboration with the Clinical Research Center in Salzburg and the Brains for Brain Foundation, has organized a PRECEPTORSHIP PROGRAMME ON TREATABLE LYSOSOMAL STORAGE DISEASES (LSDs) – MANAGEMENT AND TREATMENT that will take place at the Salzburg Medical Simulation Center on 29th -30th of June – 1st of July 2020 […]
On-time diagnosis is crucial for access to treatment and clinical trials, disease management, and to access the proper care services at the earliest of the disease possible.
This joint event will continue the RE(ACT) Congress series (6th edition) and IRDiRC Conference series (4th edition). It aims to bring together scientific leaders and experts and young scientists from a variety of breakthrough scientific fields to present cutting-edge research, exchange ideas, and discuss policies related to rare diseases research. Patients and patient organizations, who are committed to research, will also be in attendance to share their experiences and perspectives.
16th International SPDM Symposium | 19-20 March 2020