On-time diagnosis is crucial for access to treatment and clinical trials, disease management, and to access the proper care services at the earliest of the disease possible.
This joint event will continue the RE(ACT) Congress series (6th edition) and IRDiRC Conference series (4th edition). It aims to bring together scientific leaders and experts and young scientists from a variety of breakthrough scientific fields to present cutting-edge research, exchange ideas, and discuss policies related to rare diseases research. Patients and patient organizations, who are committed to research, will also be in attendance to share their experiences and perspectives.
Patients and specialists of Anderson-Fabry disease will meet in Florence on March 28th-29th, for the Annual Italian Meeting organized by AIAF Onlus.
16th International SPDM Symposium | 19-20 March 2020
The Annual MetabERN Board meeting will take place in Frankfurt from 2-4 April 2020. During this meeting topics of general interest for the functioning of the network will be discussed.
The International Course Training on strategies to foster solutions of undiagnosed rare disease cases is part of a series of training activities.