MetabERN, as part of the capacity building and training activities, in collaboration with the Clinical Research Center in Salzburg and the Brains for Brain Foundation, has organized a PRECEPTORSHIP PROGRAMME ON TREATABLE LYSOSOMAL STORAGE DISEASES (LSDs) – MANAGEMENT AND TREATMENT that will take place at the Salzburg Medical Simulation Center on 29th -30th of June – 1st of July 2020 […]
Register now for limited places at the preceptorship medical course “Optimising Care in MPS Disease at The Nowgen Centre, Manchester Royal Infirmary, United Kingdom. This one and a half-day training course is designed for clinicians and nurses to learn and share the experience within an open and stimulating academic environment. The programme will provide a […]
This joint event will continue the RE(ACT) Congress series (6th edition) and IRDiRC Conference series (4th edition). It aims to bring together scientific leaders and experts and young scientists from a variety of breakthrough scientific fields to present cutting-edge research, exchange ideas, and discuss policies related to rare diseases research. Patients and patient organizations, who are committed to research, will also be in attendance to share their experiences and perspectives.
16th International SPDM Symposium | 19-20 March 2020
Patients and specialists of Anderson-Fabry disease will meet in Florence on March 28th-29th, for the Annual Italian Meeting organized by AIAF Onlus.
The International Course Training on strategies to foster solutions of undiagnosed rare disease cases is part of a series of training activities.