Our focus is on establishing a growing and developing network. We have started with 69 HCPs from 18 European Member States, and we aim to reach out and collaborate with all expert centres in Europe. In September 2019 a call for the application of Affiliated Partners (APs) ended and since then MetabERN has welcomed 9 new Healthcare Providers (HCPs) expanding the geographical coverage to 23 EU Members States and the membership to a total of 78 HCPs.
APs are expected to provide a link to MetabERN for those EU countries that currently do not have a Healthcare Provider (HCP) represented in the network.APs will contribute to MetabERNs activities and there will be a mutual benefit in terms of shared expertise and knowledge across the EU. APss are the entry points for patients by improving the access to MetabERN across the EU.
All inherited metabolic disorder (IMD) for MetabERN are equally important, independent from their prevalence, frequency and existing previous interest for research or therapy development.
We aim to harmonise care and practices, including guidelines in patient care, we will increase interdisciplinary and inter-institutional cross talk, and support all patient initiatives towards harmonising and improving all aspects in the chain of care.
Expert specialists and their team will take advantage of this exceptional opportunity to improve health care for Orphan disorders.
With the support of the SSIEM, we encourage knowledge transfer and support specialised education for professionals and patients, which is seen as an important part of our mission.