1st MetabERN meeting with Patient and Family Associations
The 1st MetabERN meeting with Patient and Family Associations, which will be held at the Frankfurt Lindner Hotel, Germany, on 13th January 2018.
The opinion of patient and family organisations is highly valued by the MetabERN as to build the foundation for developing long-term activities and programmes centred around high-quality patient care. The meeting represents a great opportunity to strengthen patient involvement in all processes to improve health outcomes and to ensure needs are met.
In particular Patient and Family Associations attending the meeting will have the opportunity to
- Directly discuss and understand the impact of their participation in the MetabERN and how patients can benefit from participation in the network.
- Actively contribute to the empowerment of family associations.
- Create synergies with other patient organisations in addressing common needs in the field of IMDs.
- Have the chance to exchange information during either the formal activities or the informal meetings with colleagues from different backgrounds.
More information and a detailed agenda will be available soon.